Quint, that’s a great comment, and much truth in what you say. There is without question a direct connection between one’s ability to access resources and tap a network of knowledge and expertise and ultimate length of survival. In my own case (I have a rare malignancy called chordoma), we launched the Chordoma Foundation 11 years ago not just to drive research but to provide patient navigation services to impacted patients, regardless of access to resources….and it’s been ENORMOUSLY impactful. In a perfect health care system, every single patient would have a patient navigator come alongside in the event of any significant illness to help translate and chart a path forward. Thanks for the insightful feedback.

Pediatric Emergency Physician

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